Primary Progressive MS Stop?

Does primary progressive multiple sclerosis ever stop? I understand the disease can maybe stall if your lucky but will PPMS just keep progressing worse and worse in time until you die from it or complications from it?

2 Answers

  • 4 weeks ago

    It's rare, but it can slow and/or stop completely. MS is not considered a fatal disease, even for patients with PPMS, but yes, there is a higher risk of dying. If the patient e.g. ends up bedridden, then there is an increased risk of pneumonia which can be fatal.

    The good news is there is now, finally, a medication (ocrevus) that can help slow the progression of PPMS, and my guess is that with this break-through more will be on the way, just like it happened with the relapsing remitting MS.

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  • 1 month ago

    Occasionally the progressive pattern changes to a more stable course, but there's  It usually does not come about through treatment.  The progressive form

    can and usually does go into remission now and then, but it tends to advance each time it flares up.   Treatments may prolong the remissions in some people and delay the progression. The progressive form will often lead to fatal complications if a person gets MS in early to mid-life.  Advanced MS can impair breathing and make people susceptible to pneumonia.  Pneumonia is one of the biggest risks. 

    • Owen1 month agoReport

      Is it possible to have advanced MS which will never effect your breathing or swallowing?

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