My mom was diagnosed with Acute Lymphoblastic Leukemia, but her jaw hurts like crazy? Why?
The next day she was fine, walking around and talking normal, but the following day, it was back to square one. Major pain again, she compared the pain to it feeling like her mouth and jaw was on fire. It was so strong, that her jaw was beginning to numb. I brought her to her doctor that she usually visits, and they checked her out. They were thinking Strep too. They ran some test and drew blood from her but it would take about a day for the results to come back. So they gave some injection for the pain and some subscriptions but they completely failed. Didn't work at all to ease the pain. So they sent us home but were to come back the next day for the results of the blood test. That never happened.
For the second time we rushed her to the hospital, this time they kept her over-night. They were checking everything, running MRI test to X-rays and then after about a full 8 hours into the next day. One doctor said "This looks like a type of Leukemia." But they needed to check the Bone Marrow so they did the Biopsy. They had to do it to give them the answers they needed, they claim. So as we moved from room to room, and a team of Cancer doctors came to us and told us it was Leukemia. They wanted to start Chemo as soon as possible, but they had to make sure which type it was.
They figured out which one it was and called it Acute Lymphoblastic Leukemia (ALL) and started Chemo in a few days. She stayed in the hospital for about 3 weeks. Some of the roughest weeks of our entire lives, but she pulled through. She was very weak once she got out and came home, but there was no sign of the jaw pain anymore. Although, her jaw was still numb at the bottom, the doctors gave no reasoning behind it.
Few weeks passed, and she was back in the hospital for her 2nd cycle of Chemotherapy. Everything was going ok, and her the Cancer was not showing up as much anymore, but a week after her second cycle, she began to feel tired and had a small headache. She thought it was nothing, that maybe she had been trying to do too much, so just rested. But it got worse. The pain in her jaw was returning, and it was still numb. Two days later, we're back in the ER.
They began running test on her, they thought some cancer could have gone to her brain. But everything came back negative. She was ok in all areas but still had this major pain in her jaw. Finally, the doctors were trying to find what was the cause of this. At first, they said it was an ear infection, then thought TMJ....and after that they said it was an infection in the bone. Or thought it could be one of those problems. They gave her anti-biotics and sent her home but the pain continues right now. And she can't handle it anymore.
I looked up some things and maybe it could be ONJ - Osteoncrosis of the Jaw, but I'm no doctor, and I can't run any test on her. So maybe someone out there has seen this somewhere before and could help us on what to do. How to reduce the pain. Help in general.
Thank You for reading.