Infantile spasms advice please?

Hi, my baby was took into hospital at 7 months old following a seizure at home, he was in hospital for 11 days and we were told he has a form of epilepsy called infantile spasms/wests syndrome, currently we are trailing medication to see what works for him.

I dont not know alot about this as i know no one who has it, i was wondering of anyone who uses these forums is going thro the same thing?

My son also doesnt spoon feed as he cant swallow anything as it all makes him choke i have two older children who never had any problems so im unsure why he is doing this!

please feel free to contact me if there is anyone else out there, thanks

3 Answers

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  • Anonymous
    1 decade ago
    Favorite Answer

    My son survived IS. He was dx'd @ 6 mos, started on ACTH, and within 2 weeks he was seizure free. It's very dependant on if there is an underlying condition, like any developmental delay or brain tumor. My heart goes out to you. Please contact me if you have any other questions. Good luck and god bless.

  • Anonymous
    1 decade ago

    There is a great forum for IS through yahoo

    http://health.groups.yahoo.com/group/infantilespas...

    or here is another great forum

    http://www.infantilespasms.com/forum/index.php

    They have tons of very experienced parents that are very helpful!

    My daughter has had is for almost 4 months now and has taken acth injections, vigabatrin and is currently on the ketogenic diet.

    Hope this is helpful!! Good luck to you and your little one!!

  • Anonymous
    4 years ago

    My coronary heart merely broke when I examine your question, i'm so sorry to pay attention approximately your venture. do no longer think of the worst, consistently have faith in the terrific. Be good and place self assurance in the individuals who love you that should assist you thru!

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