1. What was your first reaction when you found out that you had diabetes? I was 10 years old when dx. My first thought was why did God give this to me. I was mad.
2. Has your life changed since finding out you have it? In the 32 years of having type 1 diabetes, every year there is something changing. From how exercise and what I eat affects how I feel, to side effects from having diabetes. There were years when things I ate would not digest correctly, I had to drink horrible sugary medicine which helped my stomach but killed my blood sugar levels. When dx, we didn't have blood sugar testing equipment. All results were after the fact, so we were trying new things all the time.
3. What is your typical day like when you have to take insulin? I have had to take insulin everyday since dx. Typical day today is wake up, check blood sugars, take meds, eat (when I'm not hungry) go to work, make sure I eat my snacks and lunch on time, make sure I'm not working too hard or I have to lower my insulin. (on pump).....and so on. In general having to eat when not hungry is the biggest daily problem.
4. How does it feel having type 1 diabetes? It sucks, when you get low, you feel like a bowl of jello, not being able to understand or function correctly, missing huge gaps of time. When blood sugars are high, there are headaches, thirsty, and feeling tired.
5. Are you more health conscious now? What 10 year old is health conscious I don't know, but being raised to eat healthier has always been there. I can remember at about age 13 or 14, rebellion was to eat something I wasn't suppose to have, like twinkies.
6. What actions are you taking as of now to prevent any further bad effects? See a doctor every month, on a continuous glucose monitor, and on a pump.
7. What are some side effects of medications you take? large knots where injection sites are and bruising.
8. Has it or will affect your children? My kids, know when I say I need something to eat to get me juice or something with sugar and to hurry. I have only passed out twice that I can remember, but my kids know when I'm low, things have to wait. (they are 14 and 21 now)
9. What was your diet before found out and what is your diet now? My mom said I was the kid who didn't want the cakes, pies and stuff, I have always perferred veggies and cheese.
10. Do you exercise regularly? If so, what type? No my work is exercise enough, I do have to lower my basal rate by 30% while at work.
11. What medication are most frequently prescribed for diabetes? type one diabetics have to have insulin, there is no choice.
12. How often do you test your blood sugar? 4 or more times a day even with a CGMS.
13. How can we young people reduce the rick of becoming type 1 diabetic? Young people don't really get a chance to reduce the risk, type 1 is where your pancrease just quits working, it is mostly genetic.
14. What are the chances that it will be passed on to the next generation? I was told due to my husband's family history, that my kids had a 5-10% chance. I do tend to watch them more closely than the average parent and when they start acting weird having more thirst or headaches, I check to see what their glucose level is. I also have their A1c's checked every two years.