There are a couple of reasons why an endo would postpone recommendation for the pump. One would be how well you're doing absorbing all you've been blindsided with, combined with how well you're managing the disease. If you as a parent are doing a poor job with your child's management, he won't recommend you.
Please note... Having crazy BGs doesn't necessarily mean you're doing a poor job. A roller coaster ride is par for the course with a munchkin. They get varying degrees of exercise, have less immunities, and are constantly growing. Plus she's in her honeymoon phase. Said another way, crazy blood sugar readings will never be the sole basis for an endo's decision not to recommend. The reason I stress that is because it's easy to take it personally as a parent when you're doing everything you can and still getting nutty sugars.
Some endos however, reserve personal judgement entirely and instead put a minimum amount of time they'd like the family to use injections before recommending the pump. Those doctors are of the opinion that it takes this amount of time to develop a real understanding of the disease, recognize highs and lows, juggle injections/ketones/BG checks, and for your daughter to adapt to the changes. It's not an irresponsible decision. It can however be frustrating for the parents who are sure they're ready for the transition.
The pump will help improve BGs and A1c. If she's very insulin/carb senstive, it doesn't make anything magically change. My best advice to you would to be to do your homework on pumps, identify what you are looking for in a pump (they all have different areas of expertise), and be prepared to enter a meaningful conversation, friendly controversy about the child's best interest. It will impress him if you are informed on the subject, and will surely affect his opinion to recommend.
To get you started on research, hearing your situation, I'd recommend Animas or Minimed for your daughter. Animas can deliver insulin in .01 increments, this is especially useful with a child so small. Minimed is compatible with a continuous glucose monitoring system. A CGMS takes continual BGs every 15 mintues (does not replace regular BG checks though). If she were to continue unexplainably with wild BGs, a CGMS could help zero in on trends and causes. Some people will tell you that the Cozmo is the greatest because it's springloaded injections minimize the pain. While this is true, those particular injections go "straight in" and a child that young isn't eligible for that type of injection (not enough fat).
Good luck, feel free to email me if you like. Our daughters have a lot in common and I'd be happy to share with you some of our experience.
Mom to type 1, age 6
Dx age 3
· 1 decade ago